Watch a Sunrise

Thank you Tamara for doing this for Lola ❤

Here’s your sunrise baby! All the way from Venice, Italy

#LolasBucketList #LoveLikeLola

The sunrise in Venice, Italy
The sunrise in Venice, Italy

Remember to always LOVE LIKE LOLA

Lola had her consult yesterday with a phenomenal radiation oncologist at Alta Bates in Berkeley. We made the decision to have her radiation done in the Sacramento area at a facility run by colleagues of Dr. Swift. Our first appointment will be on Tuesday.

As I mentioned on Monday, the tumors in both lungs continue to grow with the right lung pressing on her trachea and vena cava. While on oxygen, her saturation levels are normal, but heart rate is still hovering around 140, sometimes reaching as much as 150, causing anxiety which makes it difficult for her to get a good breath.

As soon as we arrived home yesterday, she started to feel bad again. The four hour drive from the Bay did not help. She was up and down all night with breathing issues. The dry climate and elevation, I believe, are playing a huge part in this, not to mention we are packing to move (THIS WEEKEND!!!) so the stirring up of dust, etc. in the house is not helping either.

This morning she told me that she didn’t want me to care for her anymore and that it was time for me to just be her MOM. As difficult as it is to admit, I feel the same way. We have made the decision to move in to the George Mark Children’s House, a free standing pediatric palliative care facility in the Bay area until the house in Sacramento is ready. Right now, its all about family time and just surrounding each other with as much love as we can. Lola’s dad has been working in Sacramento since April and we have been separated for much too long. This wasn’t our ideal plan, but we are living day to day at this point.

Thank you so much for all your kinds words, prayers, and thoughts. We are so thankful. We love you all ❤

Remember to always  #LOVELIKELOLA

Lola’s Bucket List

From my post on Instagram:
So the hospice nurse just came over, it was a pretty heavy conversation. We talked about oxygen tubes, how my body will slow down, how I want to go & DNR papers. It was really scary. It got me to thinking what I want to do before I go. So here are a few things I wrote down the last few days. I want to post a picture of everything I can accomplish and hashtag it as #lolasbucketlist and if you have any suggestions hashtag it under that! I also want to thank Teddy Mack who donated a parasailing trip in Tahoe for me! #bucketlist #hospice #lolasbucketlist #parasailing #stupidcancer #fuckcancer #fxckcancer #childhoodcancer #sarcoma #DNR #scared #rarecancer #lungtumors #lovelikelola

Lola's Bucket List


I’ll be posting pics and video of my quest to complete this “summer” bucket list so stay tuned!!!!