More details on Lola’s Celebration of Life

More details about Lola’s Celebration of Life:

I am trying to get a “close” headcount on how many people will be coming. Can you please reply to this status or email Erin (mchugh_erin@msn.com) to let her know you will be attending.

For those of you who cannot make it AND in lieu of flowers, donations can be made in Lola’s memory to one of her favorite organizations:

Stupid Cancer http://stupidcancer.org/
Northern Nevada Children’s Cancer Foundation http://www.nvchildrenscancer.org/
St. Baldrick’s Foundation http://www.stbaldricks.org/

Two last things — Purple is Lola’s favorite color and we’d love it if you could wear purple to her celebration. If you would like to say a few words about Lola (or even sing her a song), please let me know and I will set aside time during the celebration for everyone to do so.

Remember to check with Erin first about the potluck that what we are now calling ‪#‎EatingLikeLola‬. The list of her fav foods is in the original post about her celebration.

‪#‎LOVELIKELOLA‬

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Remember to always LOVE LIKE LOLA

Lola had her consult yesterday with a phenomenal radiation oncologist at Alta Bates in Berkeley. We made the decision to have her radiation done in the Sacramento area at a facility run by colleagues of Dr. Swift. Our first appointment will be on Tuesday.

As I mentioned on Monday, the tumors in both lungs continue to grow with the right lung pressing on her trachea and vena cava. While on oxygen, her saturation levels are normal, but heart rate is still hovering around 140, sometimes reaching as much as 150, causing anxiety which makes it difficult for her to get a good breath.

As soon as we arrived home yesterday, she started to feel bad again. The four hour drive from the Bay did not help. She was up and down all night with breathing issues. The dry climate and elevation, I believe, are playing a huge part in this, not to mention we are packing to move (THIS WEEKEND!!!) so the stirring up of dust, etc. in the house is not helping either.

This morning she told me that she didn’t want me to care for her anymore and that it was time for me to just be her MOM. As difficult as it is to admit, I feel the same way. We have made the decision to move in to the George Mark Children’s House, a free standing pediatric palliative care facility in the Bay area until the house in Sacramento is ready. Right now, its all about family time and just surrounding each other with as much love as we can. Lola’s dad has been working in Sacramento since April and we have been separated for much too long. This wasn’t our ideal plan, but we are living day to day at this point.

Thank you so much for all your kinds words, prayers, and thoughts. We are so thankful. We love you all ❤

Remember to always  #LOVELIKELOLA

Get More Tattoos

Cross one more thing off of #LolasBucketList – Get MORE tattoos!!!

Lola, Tyler (her brother), Danielle (Tyler’s GF) and I went to Absolute Tattoo here in Reno and got matching tats! Lola’s dad Jim will be getting his as well this weekend as he couldn’t join us because of work =(

Check out the pics below! And also be sure to check back frequently to see #FlatLola and her adventures!!

#LoveLikeLola

Lola getting her tattoo
Lola getting her tattoo
All done =)
All done =)
Tyler all done =)
Tyler all done =)
Stronger than cancer!
Stronger than cancer!
Mom getting her tattoo
Mom getting her tattoo
Tyler, Danielle, Lola and Mom
Tyler, Danielle, Lola and Mom
Danielle's tat
Danielle’s tat
Lola's selfie
Lola’s selfie
All four tattoos <3
All four tattoos ❤

Lola’s Bucket List Meets Flat Lola

As many of you know, Lola and I did not make it to NYC last week. Upon landing in Salt Lake City on a layover, she asked if we could go home. Instead of flying home, we decided to fly to Oakland instead and our NP picked us up from the airport. I had already called the hospital while in SLC so she was a direct admit when we arrived (thank you Connie for picking us up).

The difference between Wednesday and Thursday was like night and day. Changes to her pain and nausea medication are still going on, but we are happy that things are moving forward and she is, for the most part, without either.

So, in honor of Lola and #LolasBucketList, we’d like to invite you to participate and help her cross things off of her list! Some have been creative and printed out pics of her (Flat Lola) while they are doing things on her list. Some have held up signs with our hashtags on them (#LoveLikeLola #LolasBucketList #FlatLola).

If you post these pics on social networks (Twitter, Instagram, Facebook), please use the hashtags above and also tag myself and Lola in the pics so that we see them =)

Lola: Twitter & Instagram — Lola_Scott1

Cherri: Twitter & Instagram — cherrichiodo

You can also email me the pics (I’d love to post them here on the blog) at LoveLikeLola143 (at) gmail (dot) com

Here are some pics of Flat Lola and her shenanigans in NYC and Orlando!!

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Lola’s Bucket List Has Been Updated!

Please check out Lola’s bucket list – it’s been updated!

Our trip to LA was awesome! We arrived home yesterday, cutting the trip down by one day. We will be doing the same for our trip to NY, as Lola’s pain and nausea has been extremely difficult to manage. We are so thankful for TrinityKids Care hospice in LA/Orange County for making the necessary changes to her medications to make her trip a little easier.

I plan to make separate “gallery” pages to include all of our pics, especially the ones that Lola has been taking with her camera. I must say that she is a budding professional photographer! She has a creative eye for sure.

One thing that is not pictured is the psychic reading Lola had on Friday. It was amazingly profound and very personal. She spoke to Lola about her past lives, her journey in the physical world now and three of Lola’s loved ones came through to speak to her. IF she chooses to share details, I’ll let her write the blog post. Needless to say, it was something that both her and I needed in the middle of all this chaos. Thank you Erin for this.

I’d like to personally thank the following people who made our trip to LA so special. We love you all so much ❤

Ryan Coffelt – meeting Dan Smith was OUT OF THIS WORLD!!

Kelsey Doonan – thank you for making my beautiful princess a QUEEN.

Natashia Tomek – the clothes and shoes are “to die for”!

Dan Smith – your amazing creativity shows in both your tats and your music. Thank you for taking the time to meet Lola and give her your undivided attention. The poster is already hanging up!

Stacey Owens – without you, this trip would not have been possible. Thank you for letting Lola drive your jeep and for the fancy hotel room at The Luxe. We felt like royalty ❤

Marz T and Lisa Le – just the drive over from the hotel was ONE OF A KIND! We just love being around y’all. Your sense of humor is contagious! Thanks for the laughs!!

Kerri Toepfer – not only was the massage on the beach UHmazing, but your energy was infectious. We are so thankful that we got to meet you and hang out!

Jason and Erica Mlot – I know we didn’t get to do what we had planned, but we are so grateful that y’all came up on Friday and had dinner. The conversation was hilarious at times, but who doesn’t love a belly laugh!

Tamara Young and Marti Davis – what can I say? You opened your home to Lola and I and made us feel like family. I will forever cherish the sounds of laughter coming from the girls room and the fun we had in “the OC” =) We love you and hope to see you soon! Oh, and Marti – I’ll be sending you summor’ of Minnie’s SHIT PIE!!! xoxoxo

We are OFF to NYC on Wednesday to visit more of our Stupid Cancer friends (Kenny or John, you gonna let Lola throw a drink in your face? =p) stay tuned for more of our adventures #LolasBucketList

xoxo

-cherri