The staff at Lola’s previous school (Edna Hill Middle School in Brentwood, CA) carved her name in the tree next to her friend Megan’s bench
Thank you Tamara for doing this for Lola ❤
Here’s your sunrise baby! All the way from Venice, Italy
More details about Lola’s Celebration of Life:
I am trying to get a “close” headcount on how many people will be coming. Can you please reply to this status or email Erin (firstname.lastname@example.org) to let her know you will be attending.
For those of you who cannot make it AND in lieu of flowers, donations can be made in Lola’s memory to one of her favorite organizations:
Two last things — Purple is Lola’s favorite color and we’d love it if you could wear purple to her celebration. If you would like to say a few words about Lola (or even sing her a song), please let me know and I will set aside time during the celebration for everyone to do so.
Remember to check with Erin first about the potluck that what we are now calling #EatingLikeLola. The list of her fav foods is in the original post about her celebration.
Lola had her consult yesterday with a phenomenal radiation oncologist at Alta Bates in Berkeley. We made the decision to have her radiation done in the Sacramento area at a facility run by colleagues of Dr. Swift. Our first appointment will be on Tuesday.
As I mentioned on Monday, the tumors in both lungs continue to grow with the right lung pressing on her trachea and vena cava. While on oxygen, her saturation levels are normal, but heart rate is still hovering around 140, sometimes reaching as much as 150, causing anxiety which makes it difficult for her to get a good breath.
As soon as we arrived home yesterday, she started to feel bad again. The four hour drive from the Bay did not help. She was up and down all night with breathing issues. The dry climate and elevation, I believe, are playing a huge part in this, not to mention we are packing to move (THIS WEEKEND!!!) so the stirring up of dust, etc. in the house is not helping either.
This morning she told me that she didn’t want me to care for her anymore and that it was time for me to just be her MOM. As difficult as it is to admit, I feel the same way. We have made the decision to move in to the George Mark Children’s House, a free standing pediatric palliative care facility in the Bay area until the house in Sacramento is ready. Right now, its all about family time and just surrounding each other with as much love as we can. Lola’s dad has been working in Sacramento since April and we have been separated for much too long. This wasn’t our ideal plan, but we are living day to day at this point.
Thank you so much for all your kinds words, prayers, and thoughts. We are so thankful. We love you all ❤
Remember to always #LOVELIKELOLA
Cross one more thing off of #LolasBucketList – Get MORE tattoos!!!
Lola, Tyler (her brother), Danielle (Tyler’s GF) and I went to Absolute Tattoo here in Reno and got matching tats! Lola’s dad Jim will be getting his as well this weekend as he couldn’t join us because of work =(
Check out the pics below! And also be sure to check back frequently to see #FlatLola and her adventures!!
As many of you know, Lola and I did not make it to NYC last week. Upon landing in Salt Lake City on a layover, she asked if we could go home. Instead of flying home, we decided to fly to Oakland instead and our NP picked us up from the airport. I had already called the hospital while in SLC so she was a direct admit when we arrived (thank you Connie for picking us up).
The difference between Wednesday and Thursday was like night and day. Changes to her pain and nausea medication are still going on, but we are happy that things are moving forward and she is, for the most part, without either.
So, in honor of Lola and #LolasBucketList, we’d like to invite you to participate and help her cross things off of her list! Some have been creative and printed out pics of her (Flat Lola) while they are doing things on her list. Some have held up signs with our hashtags on them (#LoveLikeLola #LolasBucketList #FlatLola).
If you post these pics on social networks (Twitter, Instagram, Facebook), please use the hashtags above and also tag myself and Lola in the pics so that we see them =)
Lola: Twitter & Instagram — Lola_Scott1
Cherri: Twitter & Instagram — cherrichiodo
You can also email me the pics (I’d love to post them here on the blog) at LoveLikeLola143 (at) gmail (dot) com
Here are some pics of Flat Lola and her shenanigans in NYC and Orlando!!