Two last things — Purple is Lola’s favorite color and we’d love it if you could wear purple to her celebration. If you would like to say a few words about Lola (or even sing her a song), please let me know and I will set aside time during the celebration for everyone to do so.
Remember to check with Erin first about the potluck that what we are now calling #EatingLikeLola. The list of her fav foods is in the original post about her celebration.
Lola had her consult yesterday with a phenomenal radiation oncologist at Alta Bates in Berkeley. We made the decision to have her radiation done in the Sacramento area at a facility run by colleagues of Dr. Swift. Our first appointment will be on Tuesday.
As I mentioned on Monday, the tumors in both lungs continue to grow with the right lung pressing on her trachea and vena cava. While on oxygen, her saturation levels are normal, but heart rate is still hovering around 140, sometimes reaching as much as 150, causing anxiety which makes it difficult for her to get a good breath.
As soon as we arrived home yesterday, she started to feel bad again. The four hour drive from the Bay did not help. She was up and down all night with breathing issues. The dry climate and elevation, I believe, are playing a huge part in this, not to mention we are packing to move (THIS WEEKEND!!!) so the stirring up of dust, etc. in the house is not helping either.
This morning she told me that she didn’t want me to care for her anymore and that it was time for me to just be her MOM. As difficult as it is to admit, I feel the same way. We have made the decision to move in to the George Mark Children’s House, a free standing pediatric palliative care facility in the Bay area until the house in Sacramento is ready. Right now, its all about family time and just surrounding each other with as much love as we can. Lola’s dad has been working in Sacramento since April and we have been separated for much too long. This wasn’t our ideal plan, but we are living day to day at this point.
Thank you so much for all your kinds words, prayers, and thoughts. We are so thankful. We love you all ❤
Cross one more thing off of #LolasBucketList – Get MORE tattoos!!!
Lola, Tyler (her brother), Danielle (Tyler’s GF) and I went to Absolute Tattoo here in Reno and got matching tats! Lola’s dad Jim will be getting his as well this weekend as he couldn’t join us because of work =(
When we visited Hollywood on Thursday it was cloudy/overcast. Our original plan was to go up to Griffith Observatory, but they were closed. Lola took this with her iPhone through the telescope. We improvised =)
If you look closely you can see the HW sign in the distance behind us
A few days ago my moms friend, Wendy came in from Texas to have a girls weekend w/ my “granny” , mom , and I while were in Tahoe! It’s been depressing weather but hopefully it will clear up by tomorrow, but so far Wendy and I got our ears pierced. I got my third whole done and Wendy got her second. Also if you can’t tell I died my hair! it was supposed to be a dark brown but my natural red came out, this coming from my red-headed mom. She’s enjoying it!