Lola had her consult yesterday with a phenomenal radiation oncologist at Alta Bates in Berkeley. We made the decision to have her radiation done in the Sacramento area at a facility run by colleagues of Dr. Swift. Our first appointment will be on Tuesday.
As I mentioned on Monday, the tumors in both lungs continue to grow with the right lung pressing on her trachea and vena cava. While on oxygen, her saturation levels are normal, but heart rate is still hovering around 140, sometimes reaching as much as 150, causing anxiety which makes it difficult for her to get a good breath.
As soon as we arrived home yesterday, she started to feel bad again. The four hour drive from the Bay did not help. She was up and down all night with breathing issues. The dry climate and elevation, I believe, are playing a huge part in this, not to mention we are packing to move (THIS WEEKEND!!!) so the stirring up of dust, etc. in the house is not helping either.
This morning she told me that she didn’t want me to care for her anymore and that it was time for me to just be her MOM. As difficult as it is to admit, I feel the same way. We have made the decision to move in to the George Mark Children’s House, a free standing pediatric palliative care facility in the Bay area until the house in Sacramento is ready. Right now, its all about family time and just surrounding each other with as much love as we can. Lola’s dad has been working in Sacramento since April and we have been separated for much too long. This wasn’t our ideal plan, but we are living day to day at this point.
Thank you so much for all your kinds words, prayers, and thoughts. We are so thankful. We love you all ❤
Remember to always #LOVELIKELOLA
One thought on “Remember to always LOVE LIKE LOLA”
LOLA AND FAMILY: WE ARE SO SORRY TO HEAR YOUR BREATHING IS DIFFICULT. WE ALSO LIVE IN NV WHERE IT IS VERY DRY AND DUSTY. WE ARE PRAYING THAT YOUR MOVE WILL BE EASIER FOR YOU AND YOUR ENTIRE FAMILY. WE GO FOR CHEMO TOMORROW TO RENO SO IF THERE IS ANYTHING WE CAN DO WHILE WE ARE UP THERE, PLEASE CALL ME AT 775 530-1389. BY THE WAY, I CAN BRING HER SOME REALLY COOL SIGNS I HAVE (TAKEN) LOL IF YOU CALL, ME BEFORE WEW LEAVVE IN THE MORNING. I WOULD BE MORE THAN HAPPY TO BRING HER THE COOLEST!